One Chicago woman’s health journey: six lung collapses, then a rare disease diagnosis
A Chicago writer was diagnosed with thoracic endometriosis in 2021. Before that a doctor told her, “That’s so rare. No one ever gets that.”
Thirty million people live with a rare disease in the United States. And for many of them, it often takes years to get a diagnosis.
For one Chicago woman, those years were marked by uncertainty and doctors’ dismissal of her growing pain as she experienced lung collapse after lung collapse. She was eventually diagnosed with a rare form of endometriosis.
Reset sits down with her to hear her story and to talk about how women navigate physical pain and the medical system.
GUEST: Britt Julious, Chicago Tribune music critic
More From
Reset with Sasha-Ann Simons
One Chicago woman’s health journey: six lung collapses, then a rare disease diagnosis
A Chicago writer was diagnosed with thoracic endometriosis in 2021. Before that a doctor told her, “That’s so rare. No one ever gets that.”
Thirty million people live with a rare disease in the United States. And for many of them, it often takes years to get a diagnosis.
For one Chicago woman, those years were marked by uncertainty and doctors’ dismissal of her growing pain as she experienced lung collapse after lung collapse. She was eventually diagnosed with a rare form of endometriosis.
Reset sits down with her to hear her story and to talk about how women navigate physical pain and the medical system.
GUEST: Britt Julious, Chicago Tribune music critic